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The activities of the Multinational Center for Quality of Life Research:

  1. Coordination of the following on-going research projects:
    • Oncology
      • Prevalence and treatment of cancer-related symptoms in Russia: multicenter national epidemiological study
      • Monitoring of quality of life and symptoms in new breast cancer patients undergoing conventional treatment
      • Monitoring of quality of life and symptoms in advanced colorectal cancer patients undergoing first line chemotherapy
      • Study of quality of life and symptom profiles in patients with advanced solid tumors
    • Hematology
      • Monitoring of quality of life and symptoms in new non-Hodgkin's lymphoma patients undergoing conventional treatment
      • Monitoring of quality of life and symptoms in new Hodgkin's disease patients undergoing conventional treatment
      • Monitoring of quality of life and symptoms in refractory non-Hodgkin's lymphoma patients undergoing different treatment modalities
      • Monitoring of quality of life and symptoms in anemia patients undergoing different treatment modalities
    • Neurology
      • Monitoring of quality of life and symptoms in patients with multiple sclerosis undergoing conventional treatment
      • Monitoring of quality of life and symptoms in patients with multiple sclerosis undergoing high dose chemotherapy+ autologous stem cell transplantation
    • Rheumatology
      • Monitoring of quality of life and symptoms in patients with rheumatoid arthritis undergoing different treatment modalities
      • Monitoring of quality of life and symptoms in patients with osteoarthritis undergoing different treatment modalities
    • Pediatrics
      • Monitoring of quality of life and symptoms in children with hematological malignancies undergoing high dose chemotherapy+autologous stem cell transplantation
      • Quality of life and symptoms in long-term cancer survivors
  2. Translation, cultural adaptation and (or) psychometric validation of internationally accepted questionnaires:
    • EORTC Quality of Life Questionnaire, EORTC-QLQ C-30 (validation)
    • RAND 36-Items Short Form Health Survey, RAND SF-36 (RAND, USA) (validation)
    • Functional Assessment of Cancer Treatment - General, FACT-G (D. Cella et.al.,USA) (validation)
    • Functional Assessment of Multiple Sclerosis, FAMS (D. Cella et.al., USA) (translation, cultural adaptation, validation)
    • Arthritis Impact Measurement Scale 2 - Short Form, AIMS2-SF (F. Guillemin et.al., France) (translation, cultural adaptation, validation)
    • Osteoporosis Assessment Questionnaire, OPAQ (S. Silverman, USA) (translation, cultural adaptation)
    • Gastrointestinal Rating Scale, GSRS (I. Wiklund et.al., Sweden) (translation, cultural adaptation, validation)
    • Brief Pain Inventory, BPI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
    • McGill Pain Questionnaire, MPQ (Melzack et al., Canada) (translation, cultural adaptation)
    • Brief Fatigue Inventory, BFI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
    • MD Anderson Center Symptom Inventory, MDASI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
    • Pediatric Quality of Life Inventory, PedsQL (J.Varni, USA (translation, cultural adaptation, validation)
    • Diabetes Treatment Satisfaction Questionnaire, DTSQ (C. Bradley,UK) (validation).
  3. Organization of the following scientific meetings:
    • All-Russian Conference with International participation "Quality of Life Research in Medicine", St.Petersburg, 3-4 June 2000
    • All-Russian Conference with International participation "Palliative Care and Quality of Life", St.Petersburg, 28-29 September, 2001
    • International Conference "Quality of Life Research in Medicine", St.Petersburg, 3-5 October, 2002
  4. Conducting regular National educational workshops "Quality of Life Research in Medicine" since 2001.
  5. Issue of the All-Russian journal "The Bulletine of Multinational Center of Quality of Life Research" (since 2003, twice a year)
  6. Conducting workshops and educational sessions within the International congresses:
    The experts of the Multinational Center for Quality of Life Research conducted the following workshops:
    • Workshop "Cross-cultural Experience of Symptom Measurement: Methods and Utilization" 11th ISOQOL Conference, 16-19 October 2004, Hong-Kong.
    • Workshop "Symptom Measurement: Methods and Utilization" 12th ISOQOL Conference, 19-22 October 2005, San Francisco.
    • Educational session "Symptom Measurement in Advanced Cancer: from Methodology to Clinical Use", 4th Research EAPC Forum, May 25-27 2006, Venice.
    • EHA Scientific Working Group Meeting "Quality of Life and Symptoms", 11th Congress of European Hematology Association, 15-18 June 2006, Amsterdam.
    • Workshop "Bridging the Gaps in Understanding Symptom Burden and Quality of Life Impairment in Cancer Patients", 13th ISOQOL Conference, 10-14 October 2006, Lisbon.



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