 Objectives
Activities
Publications
The activities of the Multinational Center for Quality of Life Research:
- Coordination of the following on-going research projects:
- Oncology
- Prevalence and treatment of cancer-related symptoms in Russia: multicenter national epidemiological study
- Monitoring of quality of life and symptoms in new breast cancer patients undergoing conventional treatment
- Monitoring of quality of life and symptoms in advanced colorectal cancer patients undergoing first line chemotherapy
- Study of quality of life and symptom profiles in patients with advanced solid tumors
- Hematology
- Monitoring of quality of life and symptoms in new non-Hodgkin's lymphoma patients undergoing conventional treatment
- Monitoring of quality of life and symptoms in new Hodgkin's disease patients undergoing conventional treatment
- Monitoring of quality of life and symptoms in refractory non-Hodgkin's lymphoma patients undergoing different treatment modalities
- Monitoring of quality of life and symptoms in anemia patients undergoing different treatment modalities
- Neurology
- Monitoring of quality of life and symptoms in patients with multiple sclerosis undergoing conventional treatment
- Monitoring of quality of life and symptoms in patients with multiple sclerosis undergoing high dose chemotherapy+ autologous stem cell transplantation
- Rheumatology
- Monitoring of quality of life and symptoms in patients with rheumatoid arthritis undergoing different treatment modalities
- Monitoring of quality of life and symptoms in patients with osteoarthritis undergoing different treatment modalities
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Pediatrics
- Monitoring of quality of life and symptoms in children with hematological malignancies undergoing high dose chemotherapy+autologous stem cell transplantation
- Quality of life and symptoms in long-term cancer survivors
- Translation, cultural adaptation and (or) psychometric validation of internationally accepted questionnaires:
- EORTC Quality of Life Questionnaire, EORTC-QLQ C-30 (validation)
- RAND 36-Items Short Form Health Survey, RAND SF-36 (RAND, USA) (validation)
- Functional Assessment of Cancer Treatment - General, FACT-G (D. Cella et.al.,USA) (validation)
- Functional Assessment of Multiple Sclerosis, FAMS (D. Cella et.al., USA) (translation, cultural adaptation, validation)
- Arthritis Impact Measurement Scale 2 - Short Form, AIMS2-SF (F. Guillemin et.al., France) (translation, cultural adaptation, validation)
- Osteoporosis Assessment Questionnaire, OPAQ (S. Silverman, USA) (translation, cultural adaptation)
- Gastrointestinal Rating Scale, GSRS (I. Wiklund et.al., Sweden) (translation, cultural adaptation, validation)
- Brief Pain Inventory, BPI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
- McGill Pain Questionnaire, MPQ (Melzack et al., Canada) (translation, cultural adaptation)
- Brief Fatigue Inventory, BFI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
- MD Anderson Center Symptom Inventory, MDASI (Cleeland et.al., USA) (translation, cultural adaptation, validation)
- Pediatric Quality of Life Inventory, PedsQL (J.Varni, USA (translation, cultural adaptation, validation)
- Diabetes Treatment Satisfaction Questionnaire, DTSQ (C. Bradley,UK) (validation).
- Organization of the following scientific meetings:
- All-Russian Conference with International participation "Quality of Life Research in Medicine", St.Petersburg, 3-4 June 2000
- All-Russian Conference with International participation "Palliative Care and Quality of Life", St.Petersburg, 28-29 September, 2001
- International Conference "Quality of Life Research in Medicine", St.Petersburg, 3-5 October, 2002
- Conducting regular National educational workshops "Quality of Life Research in Medicine" since 2001.
- Issue of the All-Russian journal "The Bulletine of Multinational Center of Quality of Life Research" (since 2003, twice a year)
- Conducting workshops and educational sessions within the International congresses:
The experts of the Multinational Center for Quality of Life Research conducted the following workshops:
- Workshop "Cross-cultural Experience of Symptom Measurement: Methods and Utilization" 11th ISOQOL Conference, 16-19 October 2004, Hong-Kong.
- Workshop "Symptom Measurement: Methods and Utilization" 12th ISOQOL Conference, 19-22 October 2005, San Francisco.
- Educational session "Symptom Measurement in Advanced Cancer: from Methodology to Clinical Use", 4th Research EAPC Forum, May 25-27 2006, Venice.
- EHA Scientific Working Group Meeting "Quality of Life and Symptoms", 11th Congress of European Hematology Association, 15-18 June 2006, Amsterdam.
- Workshop "Bridging the Gaps in Understanding Symptom Burden and Quality of Life Impairment in Cancer Patients", 13th ISOQOL Conference, 10-14 October 2006, Lisbon.
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